Everyone likes to receive a gift that is unique. What could be more unique than colorful, cheerful art created by the bravest people we know: the childhood cancer heroes from the 2017 Heroes Art Ball. Each one is perfect to welcome a friend to a new home, to thank your bridesmaids or to congratulate new parents. You can sense the smiles and hope of the young artists who were healthy enough to be at our Heroes Art Sessions where they playfully painted the designs. Your purchase is donated back to Connor's Heroes. You will allow us to help more children with cancer in Central Va.
To purchase Heroes Art gifts, use our secure shopping site. We are happy to ship your items directly to you (or your recepient). You are welcome to come by office and pick them up at a designated time.
Pic cred: Backlight Photography
At our last board meeting, the Board Of Directors received a copy of House Resolution No. 340 which commended us for our "compassionate service to children and families in Richmond" for ten years and "as an expression of the House of Delegates’ admiration for the foundation’s work to ensure that no child has to face the fight against cancer alone." We thank Delegate G. Manoli Loupassi, House District 68, for introducing the resolution and bringing it to a vote. Here is the full resolution
Our room decorator struck again! This time for brave Brody. His family learned of his diagnosis for Glioblastoma, a rare brain tumor that often is diagnosed in children ages 5-9. Sweet Brody is not quite 2 years old. (Like most childhood cancers, the cause of these tumors is unknown.) Facing a multitude of treatments, we learned he would be admitted to the Bone Marrow Unit. Our volunteer, Stephanie, filled his room with colorful Minions who want Brody to be as brave as them.
Local Girl Scout Troop 705 dropped off boxes of what they call, "Port Pillow." A port is the small tube that a doctor surgically implants under the skin of a child's chest. The child receives medicine directly into the port. A port reduces the number of needle pokes that our young Heroes may need (though they still need a lot of needle pokes!). The Port Pillow is a soft cushion that protects the skin around the port. The girls lovingly sewed and made 297 port pillows. They "wowed" Lisa and Erin with a presentation about why they did the service project. These young ladies achieved the Silver Award, the highest award in Girl Scouts. We are honored that they felt it in their hearts to help other children who are battling against cancer.
When a Hero Parent opens up the Parent Tote Bag, inside is a gift certificate for chiropractic care. Dominion Chiropractic Clinic and Dr. Richmond are donating their services to help our caregivers. They also sponsored the upcoming Brandermill 7.4k. Wait, there's more! They held a supply drive and collected enough donations to fill two large boxes. We are overwhelmed by their outpouring of support. If you feel inspired to support the brave childhood cancer heroes who are helped by Connor's Heroes, email erin at connorsheroes dot org.
Look for another pin on the map of research funded by Alex's Lemonade. Alex’s Lemonade Stand Foundation Innovation Award gave a $250,000 grant to Seth Corey, MD, MPH and Hrishikesh “Rishi” Mehta, PhD, who are conducting research through the Connor's Heroes Pediatric Cancer Research Fund. The award is for their proposal entitled, “Predictive Modeling of MDS Disease Progression from Inherited Bone Marrow Failure Syndromes Using Novel Branching Process and Next Generation Sequencing to Improve Patient-Specific Survival.” What does that mean for our families? Like meteorologists who use computer programming based on laboratory-derived data to predict the weather, Drs. Corey and Mehta seek to predict when pre-cancer states will become cancers in children with inherited bone marrow failure syndromes. The goal of the research is to make personalized precision medicine a clinical reality. The proposal seeks to prevent life-threatening complications by using liquid biopsies. They want to create software to screen those children who are at risk, diagnose the presence of cancer clones, and monitor for disease progression toward cancer. It will hopefully indicate the optimal time for a transplant before chemo-resistant leukemia arises or develop prevention therapy.
As Dr. Corey says, pediatric cancer research cannot happen without support from philanthropy. We are excited for the team to receive this Alex’s Lemonade Stand Foundation Innovation Award. Stay tuned for a big announcement about our fall fundraising campaign that will support Dr. Corey and his research.
Once again our friends at Primrose School rallied for children with cancer. They donated proceeds from their Spring Fling that was held at two locations.They raised $2,750! Our #HeroesofRVA families thank the families at Primrose for helping the kids.
Lelia was admitted for her third of four bone marrow transplants. She's battling the most common malignant brain tumor in children known as Medulloblastoma. Any Hero parent will tell you that one stay in the BMT is hard enough, but three and possibly a fourth?! The treatment is all-consuming requiring the family to shuttle between their home in Ashland and the hospital. Every time that Lelia was admitted, she found her room decorated with new and exciting surprises. This time, our volunteer Freya filled it with the cheerful pink, Peppa pig who Lelia loves so much. It is because of your support that Connor's Heroes can help a family every step of the way.
In honor of his Bar-Mitzvah, Aaron is working hard to raise as much money as possible for Connor's Heroes. He's off to a good start. His first month of bake sales raised close to a $1000. He plans to host bake sales for five months; baking a different cookie each month. Kids helping kids is very special to our families with Connor's Heroes. Thank you to Temple Beth El for supporting his fundraising campaign.
You can now purchase online an assortment of products featuring the art lovingly created by our childhood cancer heroes. 100% of your purchase will support our programs such as the Heroes Backpack and gift cards for out-of-town travel and daily expenses. We are happy to ship directly to you. Right now, you can purchase:
Your gift will support all the children who are in treatment and registered with Connor's Heroes.