Night at the Diamond
It's become a traditional summer event for our Hero families: Going to a Flying Squirrels baseball game. Connor's Heroes worked with our friends at the Diamond to arrange for a fun-filled night. All the families had to do was show up. The kids met Nutzy the Flying Squirrel, ran on the field and enjoyed a hot dog or two. Just as special, the families spent time together on a beautiful summer night, outside of the hospital. Your gifts support our programs so we can go all out for our childhood cancer heroes. Thank you to Kristin Seward for capturing this special night.
Ashland Barracudas Swim For Cancer
Once again the Ashland Barracudas swam for childhood cancer! They dropped off $5,000 in donations that we will include as part of our $10,000 donation to the Jamie Hess Pediatric Bone Marrow Transplant Fund at the VCU Massey Cancer Center. Jamie’s parents, Fred and Barbara, have been a part of our organization since our early years. They encouraged us to help the pediatric cancer patients who are often feeling isolated on the bone marrow transplant unit. Barbara and Fred both volunteered at this year's highly successful Heroes Art Ball. The Jamie Hess Fund and Connor’s Heroes Pediatric Cancer Research Fund are the only ones in Richmond dedicated to supporting ground-breaking childhood cancer research. Thank you to Ashland for carrying on Jamie's legacy.
Below is the story of Jamie Hess and how his illness inspired the team to swim in honor of him and our childhood cancer heroes!
Creating Smiles
These sweet girls spent an afternoon in our office making cards. They filled each one with drawings of flowers and sunshine, and wrote inspiration messages like "we're thinking of you" and "you're not alone." They also donated iTunes and GooglePlay gift cards to go with them! Parents tell us that these cards are very special to their child because they were made by other kids. Kids helping kids. It's a big part of Connor's Heroes!
CVC and United Way
Are you an employee with the State of Virginia? Does your company give through the United Way?? Connor's Heroes is an authorized charity for both!!! We received confirmation that Connor's Heroes is an affillated with the employee giving program, Commonwealth of Virginia Campaign - CVC. You can now make a regular contribution to Connor's Heroes through your payroll. All you need is this number: 08566. If your business/company encourages giving through the United Way, our United Way number is 7090. Connor's Heroes also benefits from many of Virginia's businesses' employee matching programs. All these employee matches and payroll giving add up very quickly. We couldn't provide direct support to families battling cancer or fund cutting-edge research without the support from our community of heroes! Talk to your Human Resources department to learn how you can maximize your giving to Connor's Heroes.
More Sunday Funday
Children whom you met at our Heroes Art Balls throughout the years, joined us for our latest Sunday Fun Day. Anna, Valentin and Jack had a great time together with our volunteers from our young professional group. It's hard to believe that in 2013, Anna was diagnosed with a brain tumor. Now, look at her. A smiling 10-year-old about to start 5th grade. Valentin stole the hearts of everyone at our 2014 Heroes Art Ball. He was in the middle of his treatment for Leukemia (Pre-B ALL) when he took the stage looking adorable in his tuxedo. This summer, he is traveling with his family and going to camp with his brother, Florian. Jack is almost six months into his three year treatment for T-Cell Lymphoblastic Lymphoma. Working by his side are his brother and sister, Landon and Ellie. Thank you for allowing Connor's Heroes to host these craft sessions. As you see, it is a cherished time for our Hero families.
Hero Art’s New Home
Love, love, love seeing our hero's art in its new home. Heather won the painting by our hero Drew, his brother, Bryce, and our hero artist Camilo Perdomo. Camilo had the kids splatter paint on the canvas. He then outlined the face of the chicken. It's partner piece was a beautiful cat. Heather posted on her facebook page:
"Soooo excited for my newest addition to operation renovate and decorate! I bought this one from the Connor's Heroes Foundation Heroes Art Ball and just got it back from being framed. It was painted by the cutest little boy who was battling cancer and an artist helper."
Save the date for the 2017 Heroes Art Ball: Friday, May 5 at the Science Museum Of Virginia!
Dr. Corey’s Lab
Several friends of Connor's Heroes had the distinct honor of getting a behind-the-scenes tour of Dr. Corey's lab! Austin said:
It was amazing to see the work being done by these scientists day in and day out with little zebra fish (they aren't using mice but rather fish- SO cool) to test disease and medications that will affect and hopefully cure generations for years to come. We are inspired by the dedication and efforts of Lisa and her team at Connor's Heroes. Her son was cured from cancer years ago and she has dedicated her life's work to helping other families going thru the same. We love going to their fun art ball and auction in the spring and it's really cool to see what they do with the money donated. This is a great local organization and I would highly recommend checking them out.
Thank you to Dr. Corey and Dr. Usua Oyarbide for taking the time to show us your lab.
Creating A Home Away from Home For Caleb
Caleb is a 19-year-old who underwent a bone marrow transplant this summer. We first met Caleb in 2015 after his diagnosis of AML (Pediatric Acute Myeloid Leukemia). He finished his treatment and the family was looking forward to the next stage of their journey. Unfortunately, he recently relapsed. Because Caleb was already registered with Connor's Heroes, we offered assistance as soon as we learned he was scheduled for a bone marrow transplant. Our volunteers, Monica and her daughters, glammed up his room with handpainted quotes on the walls, a friendly door sign, and Dallas Cowboys memorabilia. Erin visits him in the hospital every week. She gives the family gift cards for Kroger and Shell. (She will slip an iTunes card just for Caleb.) Mostly, she gives them parking passes. (Parking is one of the "hidden" expenses of childhood cancer that adds up quickly.) This is a great example of how deeply Connor's Heroes understands what families are going through.
If your child is battling childhood cancer and was diagnosed in Richmond, Virginia, REGISTER with Connor's Heroes so you have a community of heroes to support your child.
If you want to volunteer to decorate rooms, fill out our VOLUNTEER application.
10 Facts About Childhood Cancer
The St. Baldrick's Foundation published a blog with new research stats on childhood cancer. Some statistics are still the same, but what alarmed researchers is the fact that more children are diagnosed with cancer worldwide. According to a study by the World Health Organization, every two minutes a child is diagnosed with cancer. One thing is for certain, we are grateful to have The Connor's Heroes Pediatric Cancer Research Fund funding research for cancer's youngest patients right here in Richmond. The following ten facts were taken from the blog post: http://www.stbaldricks.org/blog/post/childhood-cancer-facts-10-things-you-should-know
1. Childhood cancer is the number one disease killer of children in the U.S.
It’s the second leading cause of death (following accidents) in children ages 5-14.
2. Every two minutes a child is diagnosed with cancer.
That’s 300,000 kids around the world every year.
3. The average age of a child diagnosed with cancer is 6.
Childhood cancer is diagnosed in all ages, from newborn infants to children and young adults.
4. 80% of children diagnosed with cancer are in developing countries.
Childhood cancer is a global problem, and one institution can’t solve it alone.
5. The most common childhood cancer is acute lymphoblastic leukemia (ALL).
In the 1950s, almost every kid with ALL died. But today, thanks to childhood cancer research, about 90% of children with ALL will survive.
6. In 80% of kids with cancer, the cancer has already spread to other areas of the body by the time it is diagnosed.
That’s why so many children with cancer need to begin treatment right away. Many adult cancers can be diagnosed early.
7. Much of what we know about treating adult cancers has been learned from childhood cancer research.
Some aspects of cancer treatment today, such as combination chemotherapy, can be traced to pediatric cancer research.
8. There are over a dozen types of childhood cancer and hundred of different subtypes.
The more rare types — when added together — account for about 30% of cancers in children and adolescents. But because so few children are diagnosed with each type, it’s very difficult to do research on these cancers.
9. One in five children diagnosed with cancer in the U.S. will not survive.
For the ones who do, the battle is never over.
10. Because of the treatments they had as kids, by the time they’re in their 30s or 40s, more than 95% of childhood cancer survivors will have a chronic health problem and 80% will have severe or life- threatening conditions.
Children should not only survive, but thrive.
Christmas in July
We celebrate Christmas In July for the families visiting VCU Children's Hospital for clinic. Erin brings bins full of toys, games, books, activities and so much more. Kids are invited to take what they wanted to fill a Connor's Heroes shopping bag. Everything in the bins came from donations by our generous community. That's not all the fun. Erin sets up a table full of crafts. As the children wait for their appointments, they make an assortment of decorations, toys, and even a crown. Who knew that paper plates and tissue paper could be so many different things? Clinic is also a time for Erin to check in with families. She hands out gift cards and food vouchers. One dad shared how much the gas gift cards help with the weekly drives to/from the hospital.
Our clinic craft days happen throughout the month. If you would like to volunteer in the future, complete the volunteer application found here: www.connorsheroes.org/get-involved/volunteer-inquiry. If you want to help families with financial support, you can donate gift cards for popular online merchants, restaurants, grocery stores, and gas stations. Mail them to our office at PO Box 2536, Midlothian VA, 23113.